![]() ![]() Guidelines for neurologists, psychiatrists, geneticists, occupational therapists, speech and language therapists, physiotherapists, dieticians, and dentists are being discussed. Other disciplines currently without guidelines are general practitioners, nurses, psychologists, and social workers. In the health care system, the role of a central coordinator or case manager is of key importance but lacks an appropriate guideline. This paper describes a managed care network comprising all the needed professionals and services. Building long-term trust is a cornerstone of the network around the patient. Additionally the patient’s voice is clear and calls for health care providers with a holistic view on patient and family. The position paper outlines current knowledge and experience alongside the experience and consensus of a recognised group of HD multidisciplinary experts. These health care providers need inter- and multidisciplinary collaboration to persevere and be efficacious in this devastating disease trajectory. The long progressive complex nature of the disease demands multiple disciplines for treatment and care of patient and family. It begins after a healthy start in life and leads through the relentless progression over many years to complete care dependency and finally death. Huntington’s disease is a complex neurodegenerative hereditary disease with symptoms in all domains of a person’s functioning.
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